Multi-stakeholder initiative

Bringing ERNs, patients and industry together

Our aim is to find consensus on future models for collaboration for ERNs and industry, which can unlock solutions for people living with a rare disease in Europe

About Us
Get involved

Submit your examples of best practice for collaboration

We are continuing to gather case studies and examples of best practice for clinical research network and industry engagement, and would like to hear from you

Contact Us
Our ambition

Future-proofing Europe’s rare disease ecosystem

With the first 5-year cycle of ERNs coming to an end, Together for Rare Diseases’ ambition is to ensure that R&D opportunities are fully exploited

Our Work

About Us

We are an agile multi-stakeholder initiative aimed at supporting European Reference Networks (ERNs) to collaborate with stakeholders to pursue opportunities that will address unmet medical needs of people living with rare diseases.

Our multi-stakeholder Steering Group brings together experts from across the EU to guide our work.

Our Aim

Unlocking opportunities

Our aim is to unlock opportunities for partnerships, particularly with the pharmaceutical industry, in areas such as:

Basic to translational research

Clinical trials for rare & ultra-rare conditions

Testing and accelerating innovative approaches to diagnosis

Development and implementation of data/evidence generation initiatives

Questions, or want to get involved?

Find out more about our work

Together4RD on Twitter

Interconnected research, diagnosis & care across the EU is needed to address the 95% of unmet need in #rarediseases. That is why Together4RD has signed @EURORDIS letter to the @EU_Commission calling for a European action plan on #RareDiseases. More here👇 https://t.co/bxgxCD7pw2
01 August at 8:18am
T4RD Steering Group Chair @SheelaUpadhyaya presented the initiative and how it contributes to addressing unmet need in #RareDisease and equitable access to treatment. See the full video below! https://t.co/ZRm3T9Bktg
12 July at 12:57pm
RT @ErnEyeEU: Read MEPs Cerdas and Knotek in The Parliament Magazine, outlining their ambitions for collaboration to unlock solutions for p…
12 July at 12:39pm