Multi-stakeholder initiative

Bringing ERNs, patients and industry together

Our aim is to find consensus on future models for collaboration for ERNs and industry, which can unlock solutions for people living with a rare disease in Europe

About Us
Get involved

Submit your examples of best practice for collaboration

We are continuing to gather case studies and examples of best practice for clinical research network and industry engagement, and would like to hear from you

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Our ambition

Future-proofing Europe’s rare disease ecosystem

With the first 5-year cycle of ERNs coming to an end, Together for Rare Diseases’ ambition is to ensure that R&D opportunities are fully exploited

Our Work

About Us

We are an agile multi-stakeholder initiative aimed at supporting European Reference Networks (ERNs) to collaborate with stakeholders to pursue opportunities that will address unmet medical needs of people living with rare diseases.

Our multi-stakeholder Steering Group brings together experts from across the EU to guide our work.

Our Aim

Unlocking opportunities

Our aim is to unlock opportunities for partnerships, particularly with the pharmaceutical industry, in areas such as:

Basic to translational research

Clinical trials for rare & ultra-rare conditions

Testing and accelerating innovative approaches to diagnosis

Development and implementation of data/evidence generation initiatives

Questions, or want to get involved?

Find out more about our work

Together4RD on Twitter

💡 The report of the Policy Asks Launch event is out, containing all important takeaways. 👉 Have a look on the website:
01 December at 2:41pm
The photos of Together4RD's first in-person event, held on 10 November in the @Europarl_EN have just been published! The event was hosted by MEPs @Frederiqueries @KnotekOndrej and @Kympouropoulos. We thank everyone for their presence and contributions. 👉
22 November at 11:44am
MEP @Kympouropoulos was virtually present at this week's @orphan_drugs - World Orphan Drug Congress - giving his thoughts and support for Together4RD's mission: to establish a new model for partnerships between ERNs and Industry to address unmet need. Check out the video 👇
18 November at 3:25pm