Bringing ERNs, patients and industry together
Our aim is to find consensus on future models for collaboration for ERNs and industry, which can unlock solutions for people living with a rare disease in EuropeAbout Us
Submit your examples of best practice for collaboration
We are continuing to gather case studies and examples of best practice for clinical research network and industry engagement, and would like to hear from youContact Us
Future-proofing Europe’s rare disease ecosystem
With the first 5-year cycle of ERNs coming to an end, Together for Rare Diseases’ ambition is to ensure that R&D opportunities are fully exploitedOur Work
We are an agile multi-stakeholder initiative aimed at supporting European Reference Networks (ERNs) to collaborate with stakeholders to pursue opportunities that will address unmet medical needs of people living with rare diseases.
Our aim is to unlock opportunities for partnerships, particularly with the pharmaceutical industry, in areas such as: