Past events

Together4RD @ ECRD 2022

Together4RD is delighted to be hosting a panel discussion on Day 1 of the European Conference for Rare Diseases 2022. More details will follow.

To register for ECRD 2022, follow this link:

Launch of Together4RD’s Policy Asks

Together for Rare Diseases (Together4RD) held its firs in person event in the European Parliament on 10th November.

The meeting was hosted by MEP Champions MEP Frédérique Ries, MEP Ondrej Knotek and MEP Sara Cerdas, and moderated by Tamsin Rose, Senior Fellow at Friends of Europe. Together4RD launched its Policy Asks: “A new model for collaboration to address areas of unmet need in rare diseases”.


Public-private partnerships within the proposed European Action Plan for Rare Diseases

Together4RD hosted a multi-stakeholder meeting, with representatives from across the rare disease community as well as policy makers, to discuss how public-private partnerships should be enabled and promoted within the proposed European Action Plan for Rare Diseases.

Together4RD @ WODC 2023

We’re delighted that Together4RD will be back at WODC 2023 to provide an update on work so far this year on the pilot projects, as well as to share key findings in our recently published White Paper/position statement!

Together4RD will be hosting two sessions on 1 November:

1. A half-day track on ERNs (14h10-16h10)
2. A plenary panel discussion on the policy environment for ERN-industry collaboration (16h30-17h30)

Registration to attend WODC 2023 is still open! We hope to see many of you there.
  • Date

    1 November 2023

  • Time

    14h10 onwards

  • Location

    World Orphan Drug Congress 2023, Barcelona

Together4RD on Twitter

01 January at 12:00am