Launch of Together4RD’s Policy Asks

Together for Rare Diseases (Together4RD), invites you to its first in-person event, taking place in the European Parliament on 10th November.

The meeting will be hosted by MEP Champions MEP Frédérique Ries, MEP Ondrej Knotek and MEP Sara Cerdas, and moderated by Tamsin Rose, Senior Fellow at Friends of Europe. Together4RD will launch its Policy Asks: “A new model for collaboration to address areas of unmet need in rare diseases”.

Registration to attend is now open.

Past events

Second Multi-stakeholder Meeting

The Together4RD Steering Group will be hosting a multi-stakeholder meeting, with representatives from across the rare disease community as well as policy makers, to discuss their findings on ERN and industry collaboration models to date, and gather input into their plans for H2 2022.

Together4RD @ ECRD 2022

Together4RD is delighted to be hosting a panel discussion on Day 1 of the European Conference for Rare Diseases 2022. More details will follow.

To register for ECRD 2022, follow this link:

Together4RD on Twitter

@eurordis's @yann_eurordis will deliver a keynote speech at the launch event for Together4RD's policy asks. 👉 Thursday 10 November 2022 👉14:00-16:00 👉European Parliament, Brussels Secure your place now: Follow @Together4RD for further announcements
28 September at 1:06pm
🗣️ Come join us in the European Parliament on November 10th as we launch our Policy Asks: A new model for collaboration to address areas of unmet need in rare diseases. Don't miss out, register here 👉
16 September at 10:02am
📢We are proud to announce that our first in-person event on the 10th of November will be held under the patronage of the @CZECHIAinEU! 🇨🇿 Secure your place👉
05 September at 10:59am