Together4RD will be back at WODC 2023 to provide an update on work so far this year on the pilot projects, as well as to share key findings in our recently published White Paper/position statement!
Together4RD will be hosting two sessions on 1 November:
- A half-day track on ERNs (14h10-16h10)
- A plenary panel discussion on the policy environment for ERN-industry collaboration (16h30-17h30)
More confirmed speakers will be announced!
Sheela Upadhyaya
Together4RD Steering Group Chair
Matt Bolz-Johnson
EURORDIS
Prof. Maurizio Scarpa
ERN Coordinator, MetabERN
Gabriella Almberg
Global Head of Rare Disease Policy & Public Affairs, UCB
Stefanie Häberle
Clinical research coordinator, ERKNet
Maria del Mar Mañú Pereira
Scientific Director of ERN-EuroBloodNet, Principal Investigator at Vall d’Hebron Institute of Research
Lu Zheng
Head of Value Based Partnerships and Digital Health, Europe & Canada, Takeda
Katarzyna Mosiewicz
Global Patient Journey Manager, Medical Affairs, Rare Blood Disorders, Novo Nordisk
Alexis Arzimanoglou
ERN Epicare Coordinator
Graham Slater
EURORDIS Board Member
Anne-Sophie Chalandon
Global Rare Disease Public Affairs, Cross Rare Diseases Policy and Fabry Patient Advocacy Lead, Sanofi
Event
Resources
More information and registration is available on the WODC website
www.terrapinn.com/conference/world-orphan-drug-congress/?