The Together4RD Toolkit is intended to support a broad range of collaborative activities in which ERNs and industry might partner.
The ToolKit is the result of significant outreach and consultative processes, and is intended to reflect the needs of both ERNs and of industry, having engaged key groups of stakeholders in a co-creation process. ERNs and industry may have different needs, and see value in different components of this resource, but the idea is that it should provide added-value for both sets of stakeholders.
To attend the launch in a webinar on Monday 23 June, please register here.
SECTION A
Background knowledge – ERNs, industry and the opportunity
Tool 1: The importance of Public Private Partnerships in Rare Diseases (coming soon)
Tool 2: Examples of initiatives which foster Public-Private Partnerships in rare diseases and complementary areas (coming soon)
Tool 3: What are ERNs? (coming soon)
Tool 4: The advantages of ERNs as partners for research (coming soon)
Tool 5: Needs and priorities for industry – and what does industry need in a collaboration with ERNs? (coming soon)
SECTION B
Conceptualising and firming-up a collaborative idea of research
Tool 6: Brief Summaries of the first Together4RD Pilots (coming soon)
Tool 7: Case Studies – examples of previous or ongoing public-private collaborations in the Rare Disease Space (coming soon)
Tool 8: Summary of areas or activities for potential ERN and industry collaboration (coming soon)
SECTION C
Practical knowledge transfer – initiating and delivering a well-developed research collaboration
Tool 9: Report on the Experiences and Learnings from the first ERN-industry pilots supported by Together4RD
Tool 10: Key recommendations for both ERNs and industry from the experiences of the first ERN-industry pilots
Tool 11: Questions people should consider when approaching a new collaboration between ERNs and industry (coming soon)