Publication in Orphanet Journal of Rare Diseases
In September 2023, Together4RD published its Position Statement on Collaboration between ERNs and industry in the Orphanet Journal of Rare Diseases.
Read the full article via open access here.
The Statement delves into the EU context, seeks the current constraints on ERN research to date, and on collaboration with industry in particular. The publication aims to address potential solutions to these challenges, and details the role Together4RD aims to play in putting those solutions to work.
“ERNs are the cornerstone of clinical research on rare diseases. EURORDIS and the patient community call to establish ERN-industry collaborations under a public-private partnership framework informed by flagship pilots, to harness the research capacities of all partners, making Europe more competitive globally” – Yann le Cam, CEO of EURORDIS
An summarized infographic of the Position Statement is available below.